WEDNESDAY, June 19 (HealthDay News) -- Addie Parker was a happy
4-year-old who appeared to have the flu. But within hours she was
in a coma.
Tragically, her parents weren't familiar with the signs of type
1 diabetes -- extreme fatigue, thirst and sweet-smelling breath,
among others -- in time to save their little girl. Soon after she
was diagnosed, Addie's brain hemorrhaged. She died six days later,
about a month shy of her fifth birthday.
Experts say a lack of awareness of the signs of type 1 diabetes
is all too common. Just this month, a Wisconsin toddler died
apparently because of undiagnosed type 1 diabetes.
"Addie had flu symptoms," recalled her mother, Micki Parker, who works in the operating room at a nearby hospital but was unfamiliar with type 1 diabetes.
"By the next morning, she was throwing up every hour," Parker said. Addie didn't have a fever, but later that day, she couldn't get up from the bathroom floor because she was so dizzy.
Eventually, the Parkers learned that Addie's blood sugar level
was 543 milligrams per deciliter (mg/dL) -- more than four times
higher than normal, according to the American Diabetes
Most people have heard of type 2 diabetes, but type 1 diabetes
is far less common. It can strike at any age -- even though it used
to be known as juvenile diabetes -- and it always requires
treatment with injected insulin or insulin delivered through a
pump. People with type 1 diabetes don't produce insulin, a hormone
needed to convert the food you eat into fuel for the body. Without
insulin, glucose (blood sugar) rises to unhealthy levels.
Untreated, type 1 diabetes causes serious complications and even
death. But it's often mistaken for other illnesses -- even by
"There's an underawareness of type 1 diabetes in the public, and in the healthcare system," said Dr. Richard Insel, chief scientific officer for JDRF (formerly the Juvenile Diabetes Research Foundation). "Missed diagnoses even occur in emergency rooms; people don't always think of it."
Every day, about 80 Americans are diagnosed with type 1
diabetes, and the total number rose 23 percent between 2000 and
2009 in children under 20. Currently, about 3 million Americans --
most of them adults -- are living with type 1 diabetes, according
to the JDRF.
One of them is 20-year-old Amanda Di Lella, who was 13 when she
knew something was seriously wrong.
"I was losing weight, but I was always hungry. I was always tired. My symptoms weren't extreme at first, but they quickly got worse," she said. "I went from being tired to not being able to get out of bed, from being thirsty to drinking 10 bottles of water in the middle of the night. I had lost 15 pounds, and only weighed 75 pounds when I begged my mother to take me to the doctor."
Her pediatrician told her mother that Di Lella probably had an
eating disorder and he prescribed protein shakes.
Within a few days Di Lella wasn't waking up. Her mother took her
to the hospital, at about the same time the doctor got blood work
back showing that she had type 1 diabetes.
Her blood sugar level was over 400, and she was in diabetic
ketoacidosis, or DKA. When your body doesn't get the glucose it
needs for fuel (and when there's no insulin, glucose doesn't get
into the body's cells), it burns fats for energy. This produces an
acidic substance called ketones, which can build up in the blood,
"Once you're in DKA, you're set up for some major complications, and approximately 30 percent of people diagnosed with type 1 diabetes still present with DKA," Insel said.
After a week in the intensive care unit, Di Lella recovered. Her
doctor apologized for the error and said he had never had a case of
type 1 diabetes, so it wasn't something he normally looked for.
Insel said it's important to compare a child's changes in
behavior to the other children in the family. Is the child drinking
excessively compared to a sibling? Is a child who has mastered
nighttime bladder control suddenly wetting the bed again?
The good news is that it's easy to test for type 1 diabetes. A
urine test can detect whether there's sugar in the blood. If that
test is positive, then a simple test drawing a drop of blood from
the fingertip can confirm whether you have diabetes.
Di Lella, now a student at the University of Florida, said she
would advise others to "not ignore symptoms that seem so basic.
Even small symptoms can be a sign of something much bigger."
Parker said she wants other parents to know that a child with
type 1 diabetes "doesn't necessarily look sick. Trust your gut
instinct, and push to have your child tested."
The signs and symptoms of type 1 diabetes that everyone should
Learn more about the warning signs of type 1 diabetes from the
Please be aware that this information is provided to supplement the care provided by your physician. It is neither intended nor implied to be a substitute for professional medical advice. CALL YOUR HEALTHCARE PROVIDER IMMEDIATELY IF YOU THINK YOU MAY HAVE A MEDICAL EMERGENCY. Always seek the advice of your physician or other qualified health provider prior to starting any new treatment or with any questions you may have regarding a medical condition.
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