Living With ALS


You've been diagnosed with ALS. It's not a diagnosis you ever wanted to hear. It's not something you ever expected to deal with. Well, you'll face some new challenges on the road ahead, but there are healthy ways to cope with ALS. Here are some strategies to help you.

Take time

First, take some time to absorb your diagnosis. You and your loved ones will need to go through some powerful emotions. Understand that everyone handles grief in their own way. Talk with your loved ones. Be open and honest so you can all deal with your feelings and move forward.

Plan ahead

Make decisions now about your future. Make medical decisions while you are still independent. Talk about the end of your life, and how you would like to be cared for. Make financial plans. Get your affairs in order. Don't leave these things undone. By getting these things in order now, you'll have peace of mind. You'll help your loved ones avoid having to make stressful decisions later.

Don't lose hope

The life expectancy for people with ALS varies widely. Some people live a long time with the disease. So don't lose hope. Keeping a positive outlook can make all of your days brighter. For many people, a support group is helpful. Reach out to a group in your area. There, you'll be able to connect with other people who know exactly what you are going through.

You're still you

Remember that even as ALS affects your body, you will still be you. Sure, you'll have to adjust to new physical limitations. But you can lead a rich life full of love, learning and support.


A diagnosis of ALS is never easy, but with help from your healthcare team and your loved ones, you can cope with it in a positive way.